​Friends and family of the Wellingtons knew the 4th floor halls of The Christ Hospital (TCH) all too well. “During our 10 years LIVING with breast cancer, our family used to joke that The Christ Hospital was our ‘Mt. Auburn Bed & Breakfast.’” Not only were the halls familiar, but the people were too. “The doctors, nurses and staff on 4West certainly treated us like special guests,” says Kent Wellington, founder and KWF board chair.

​The youngest and most precocious Wellington, Angeline, knew exactly where to find rubber gloves so she could do cartwheels down the hall without getting her hands dirty. She also cracked the code to the VHS closet. On hospital sleep-overs, “Father of the Bride” was a favorite with her mom and “Ferris Bueller's Day Off” was a standard to watch with her dad. On Labor day, the view of the WEBN fireworks was hard to beat. (This was long before the new state of the art Spine Center blocked the river view.) Birthdays, family dinners and life happened at The Christ Hospital, not just for Karen, but for the whole family. Together, they embraced LIVING with breast cancer on 4West.

Today, a strong KWF advocate and friend is Nurse Navigator, Lisa Shelton. Lisa has been with TCH since 1998. She originally was an ICU nurse, but after her own Breast Cancer diagnosis (2006) she began looking for a role as a patient advocate. As a Nurse Navigator her role now involves education, patient contact, and navigating them through the unknowns. “Some patients have never been ill their entire lives before their diagnosis,”  Lisa says, “and Breast Cancer is such a scary word in and of itself.” 
Lisa also runs the Metastatic Breast Cancer Community Support Program at TCH. Participants of this group talk about how to LIVE with Stage 4 Breast Cancer. They share stories candidly, learn from each other’s journeys, and have ongoing education opportunities from professional speakers and community members. “This is an empowering group of women...not a sad group,” Lisa shares. 
​
Lisa first learned about KWF’s FunNow mission years ago. She was hooked. Just this year, Lisa has nominated over a dozen patients for a gift from KWF. It reinforces in her life what it means for her to keep LIVING and putting FUN on her calendar. “After my journey with cancer a lot of things changed for me. Material items meant nothing… I was giving everything away to family and friends. I told my children that I only wanted gifts that were LIVING, like plants and flowers,” she says.

“Recipients are the heart of [KWF].....the Recipient Ambassador Board has not only been a great addition to the foundation, but it has also empowered recipients to be able to give back” - Lori Falke, RAB chair.

For our recipients, the magic of KWF does not fade away the minute they walk out of the spa or as their homebound plane wheels touch down on the tarmac. Oftentimes, we’ve found that it is quite the opposite. It’s when they get home and have an opportunity to help give or plan a spa day or vacation for someone else that makes them come alive. That certainly was how my mom, Karen Wellington, did things. Whether it was dressing me and my friends up for Halloween and having us pass out candy to patients in the chemo chairs or simply going above and beyond to make each individual in her life feel seen - she knew the importance of giving. And that’s certainly consistent with KWF’s Give-First mantra. That giving spirit lives on thanks to the leadership of our Recipient Ambassador Board.

Our RAB is made up of 12 highly energetic, hilarious and passionate former recipients. It’s a sisterhood of sorts, a growing group that openly shares the struggles that come with cancer, while quickly pivoting to share the 4 types of alcohol mixed into their favorite cocktail recipe which they will be enjoying on this month’s virtual happy hour (open to ALL recipients.) You see, these women are used to making the best of bad situations. So when their in-person happy hour gets bumped to Zoom, they don’t complain - they pour more into their glasses and toast to resilience. 
​
This past month we added two new incredible additions to our board, Penny House and Tara Riley. While I will check-in with Penny on a later date, this month I got the chance to sit down with Tara to discuss why she joined the RAB.

As a wife, mom, grandma and longtime educator, it quickly became apparent that Tara has always been a caregiver. With a give-first mentality, she is quick to find silver linings in hardship and provide a sense of hope and sisterhood to those in need. Tara told me that when first diagnosed with cancer, she was gifted a pink fuzzy blanket. She then passed it along to a friend who was diagnosed after her. And although that blanket has been deemed the “gift that keeps on giving” - Tara decided that she would buy a fresh pink blanket and give it to each new survivor she befriended. Although it is a club no one wants to join, she found that inviting those in with a gift of cozy solidarity seemed like the best place to start.
​
Tara also pointed to the significance of her KWF vacation and the impact it had on her life. Tara and her husband, Charles, went to Naples Florida back in 2019. Despite her excitement, leading up to the trip, she had little to no energy. The physical and mental pounding from cancer had taken its toll. She was tired and for good reason. However, the minute her feet hit that white Florida sand a new boost of energy came over her. “I immediately jumped in the air,” she remembers. Tara beams that this magical trip not only changed her life, but provided a sense of relief for her husband and caretaker during a very important time. “It lifted my soul,” Tara says. 

​In joining the RAB, Tara noted the importance of being active in finding good people in good community while focusing on giving some happiness to others. We say it all the time, but at its core, KWF creates a healthy cycle of receiving and giving. Which is consistent with Tara’s life mission of bringing joy to others. Tara understands that LIVING and giving go hand and hand. She will fit in perfectly with our RAB and their mission of having FunNow while giving even more away. This group knows how to see life with a glass half full mentality. And whether you choose to fill yours with love or chardonnay is completely up to. But you’ll quickly find, they pour both. 

Tara & Penny, welcome to the sisterhood!

​Cheers.
 
-Angeline Wellington

​Together, the military gave them the opportunity to live all over the world. From the US to Asia - Terri was by his side, but paving her own path. She always was her own person. During their 4 years in Japan, Terri volunteered for several charitable organizations, dedicating her efforts to the Red Cross while making sure she took time for adventure herself. Terri was a free spirit. “She loved to travel, do new things and go new places. In 1989, “when our first son came along,” Dave notes, “she would hop in the car with him and go explore. She had an excellent sense of direction.” 

Whether it was navigational expertise or a strong moral compass, Terri also had a strong sense of directional purpose. She moved through life with a unique and loving perspective that guided her. Raising their sons Pete and Andy - Dave worked to provide structure and discipline to the household. Terri was on board, but she made it her mission to always bring the love into whatever the family did.

​At the start of their marriage Terri and Dave didn’t have the time or the money to take the honeymoon they always wanted. Between the wedding, military service and kids, a honeymoon never seemed to be in the cards. But in 2016, priorities quickly changed when Terri was diagnosed with cancer. The long overdue “honeymoon” could no longer wait. Thanks to our KWF givers, Dave and Terri honeymooned in Key West, Florida. The trip was perfect. Dave remembers it all. From the sandy beaches to the exact location of the condo and, of course, the red mustang rental that happened to be Dave’s dream car. He also remembers the smile on Terri’s face. A gift.

The trip also gave Dave and Terri a chance to be together and leave the cancer behind. This was important because Dave, like many spouses LIVING with cancer, had “to get used to not being able to solve this problem.” "I’m a caregiver, so it was tough,” Dave said, “you have to get used to sitting on the bench sometimes.” The belated honeymoon got Dave off the bench and onto a beach with Terri. That was significant.
 
The trip also proved more significant than most honeymoons due to Terri’s short time horizon. Dave and his sons lost Terri this past January.
 
As our conversation came to a close, Dave offered one last comment about KWF vacations that stuck with us, “It was something tangible, something different, something that gives hope.”  We liked that. We also really like Dave. A good man who carries on the adventurous and abundantly loving legacy of a very special lady every day. 

By: Angeline Wellington

She remembers feeling silly as she sat in the waiting room among many other women thinking to herself that she was just wasting resources that other people needed more than she did. She was in the middle of earning her doctorate and she could think of plenty of other places she would rather be than there. It wasn’t until after her doctor ordered biopsies and the nurse began ‘preparing’ her for what could happen that Chelsea got scared. By the time she left, all the other women from the waiting room were gone and she was in tears.
 
Days later, she received the dreaded call. She was home alone when she found out she had Invasive Ductal Carcinoma. Chelsea remembers screaming into a pillow and then trying to get a hold of her husband and other family members. She talked to a close confidant in the medical field who assured her that this was “totally treatable.” Chelsea decided to treat cancer like everything else in her life. One step at a time. She even bumped up her doctorate and finished all of her work in just ONE week. Work that was would have typically taken over a month.
 
​“Chemo wasn’t what I wanted to do … it was just one more thing on my schedule that I had to do. I was counting down those chemo appointments on the calendar week by week.”
 
Just as she was completing chemo, surgeries and radiation, she was feeling like herself again. She used exercise as a form of therapy. But not for long. One day she started having persistent headaches. Several MRI’s and tests later, Chelsea was diagnosed with leptomeningeal carcinomatosis - it had metastasized to her brain, specifically her spinal fluid. 

​“I’m not in charge of the outcome, but I am going to do everything I can to run your race beside you,” she said as we discussed the significance of building long-lasting, genuine relationships with her patients. Susan Crafton has been an oncology nurse at The Christ Hospital in Cincinnati, Ohio since 1983. As she is approaching the end of her career in oncology, we sat down with her to chat a little bit about why she chose this profession that is still very much a part of who she is 37 years later. Growing up on a farm in Piqua, Ohio, Susan had always envisioned leaving her small town and heading to a big city for a “glamorous career,” but circumstance and a bit of faith drove her somewhere else. “It was not glamorous, but it was my vocation,” she says.  
​​ 
In a profession where oftentimes it’s much easier to disconnect your feelings and stick to medicine, Susan did both. She is a firm believer in cultivating meaningful relationships and connecting with her patients on a deeper level, while providing the best care possible. She describes the outcome to be well worth the risk. 

​Although Susan would never say this herself, she is a fan favorite among her patients and for good reasons. The truth in that statement lies in the words of her former patient and friend, Ashley Gill. Ashley will always be remembered as a vibrant wife, friend, mother of two twin girls and so much more. Although Ashley, a KWF recipient, passed from cancer last August after LIVING a full life, her words continue to resonate and are a testament to Susan’s character:

“Susan is the imperative buffer between the doctor and patient. She always has the layman’s term explanation to the ridiculous amount of jargon that your doctor rattled off and expected you to understand. She’s the one that makes things less scary, and always with her own little flare. For the sake of keeping these comments PG we will just call it 'flare.' Susan is that nurse that prays for you when you are in a tight spot physically and/or mentally, then reassures you everything is going to be okay with her signature, 'There’s my girl.' Even though she has many, 'girls' she has a way of making me feel like I’m the only one. I honestly believe that despite my doctor’s life expectancy expectations, I am still here today because of Susan Crafton. She’s that ride or die (pun totally included) girl you need fighting for your life.” 
 
Just as Ashley speaks to her character, Susan is quick to commend her fellow nurses and colleagues working at The Christ Hospital during today’s pandemic. She gives credit where credit is due, even if that means downplaying any and all accomplishments to speak to the bravery of those risking their lives working on the front lines. Susan is grateful that she has the opportunity to work alongside such incredible medical professionals who quickly turned into lifelong friends.
 
As Susan looks back on this journey of a career, she would probably tell you she couldn’t have done it without strength, humor, resilience, a whole lot of faith and a bit of irreverence. Although she may be hanging up the scrubs soon (or so she thinks), being an oncology nurse will always be who she is. As we were ending our conversation she said, “to be honest, it saved me as much as I saved anybody.” A testament to the power that lies in connection. 
 
By: Angeline Wellington

Susan Crafton is the first recipient of our KWF “LIVING through GIVING” nurse award. Given to a nurse who embodies KWF’s core values , goes above and beyond, and works behind the scenes to better the lives of their patients. Thanks Susan.
​​

​Before August of 2018, Samantha & Michael were like most young engaged couples. They were gearing-up for the happiest day of their lives. They met at an art camp in Connecticut many years ago. Both art teachers from opposite ends of Ohio, they hit it off immediately. He moved to Cincinnati to be closer to her and complete his masters in art at DAAP. She’d already finished hers.
 
They were meant to be together.
 
Their wedding day, though, was laced with fear and uncertainty. Three weeks earlier, Samantha received news that she had cancer. She was diagnosed with Stage 1B, triple positive breast cancer – the fastest, most aggressively spreading cancer. She’d just turned 30.
 
Their appointments with caterers and florists, quickly turned to visits to the breast surgeon and oncologist who mapped-out a plan that looked nothing like the plans for their first wedding and year of marriage.
 
As active outdoorsy people, they’d planned to travel, hike and have an adventurous first year.
 
The plan now was for another adventure, but not a fun one.
 
Four days after their wedding, she got her port inserted. The next day she started chemo. “Staring down 10 rounds of chemo was daunting,” she remembers. But with her parents, husband and friends at her side, she was supported. Still… she was scared.
 
That first day of chemo, she “instinctively packed up art supplies…” and took them with her. “It’s what I do.” Her first “Chemo Art” project was a drawing for her dear friend, Katie, who baked challah every week. Katie has stood by Samantha’s side though thick and thin. Creating that first piece of art was “the best decision. It was a bit of my own therapy.”
 
In the meantime, she went back to work as an art teacher at Summit Country Day Middle School. The Summit’s Character Based Learning program is school-wide curriculum that reinforces a different character quality for each grade. Her class’ focus, Perseverance. Each student worked on a related project for the school year. Samantha joined them. From the beginning, she was open about what was happening. “I didn’t want to scare them, but I thought they should know.” She explained that she might be wearing a mask some days. That her hair would fall out other times. Her life was up in the air, but it was important to working together. That year, perseverance became a class project, with Samantha leading the way.
 
With only one year under her belt at Summit, she was concerned about how things would go.
 
In true form, the Summit family came through. Jen, the school administrative assistant set an alarm on her phone reminding her to check in on Samantha every morning. The school gave her an additional 70 minutes in the morning, knowing she was sick most days from chemo.
 
Samantha was given a special parking spot closer to the building, her lunch from the cafeteria packed and set aside to avoid the crowded lunchroom, a hand sanitizer dispenser was installed outside her classroom and disinfectant wipes for the tables were provided so the kids could help keep the tables clean. Parents donated gift cards from restaurants for dinner when she wasn’t feeling well. They checked in on her and went WAY “above and beyond,” making it possible for her to continue working.
 
Then there was chemo. This is where perseverance really kicked-in. Samantha committed to take her art supplies with her and create a new piece at each of her chemo sessions. “It became a symbol of gratitude,” she says. Each piece was “inspired by them for them.” “Most of them are of food,” she laughs. “Maybe it was a bit of a fantasy since food is a symbol of comfort and I was uncomfortable.” (Link to Samantha’s  Chemo Art.)
 
She was the youngest patient in the room most times, which made it awkward. “It can be lonely in there, even if you have great support.” Many of the older patients wanted to know her condition and ask her questions. She didn’t want to talk about that… Instead, her art opened a whole new conversation. People would ask, “What are you working on?” and she’d show them.
 
“Even when we were all super sick, people became curious about my art.” That was a welcomed relief.
 
By November she was bald. By December her chemo was done. And in February she had surgery. Yet she remained faithful with her art. Just as she was feeling better after her surgery, two teachers lured her to their room. They had a surprise. They sat her down and told her she was going on a trip that summer thanks to the Karen Wellington Foundation for LIVING with Breast Cancer. She’d never heard of the foundation, but was overwhelmed. Through her tears, she felt their love.
 
“Finally, I could call my husband with some GOOD news!” She says, of that day.
 
By late spring, she had a “little peach fuzz growing.” She felt stronger and better and was ready for that trip!
 
By this time, the KWF team had been busy planning the perfect honeymoon for Samantha and Michael. They would be heading west to a ranch in Missoula, Montana. This incredible ranch is nestled in the heart of the northern Rockies, right on the Blackfoot River. This very special home was donated by Tony and Keke Sansolone, also a Summit Family and a generous supporter of KWF. Their daughter, AC delivered the good news with Angeline Wellington, Karen’s daughter. 
 
Samantha and Michael were presented with a huge bag of goodies including everything they needed to know about where to eat, what to do, places to hikes and the best white water rafting tours. The icing on the cake, they received “Fun Money,” only to be used on the trip. A highlight was a hot air balloon adventure.
 
Things were starting to look up for them. “Having that ray of hope during a scary and dark time was the best gift.”
 
When Michael and Samantha married, they figured their honeymoon budget would be spent on medical bills. Their first year of marriage was overcast, but the sun shines again.  
 
What’s next? They are looking at doing an artist in residency in the Pacific Northwest; maybe Alaska one summer. They want to hike and stay active. Samantha says her dream is to have an art show featuring her Chemo Art with a mammography unit present to bring awareness and hope to others.
 
She says, “I thought I was a grateful person before cancer, but I wasn’t. I realize you can’t sweat the small stuff. I guess I’m more grateful and appreciative.”
 
Of the vacation, she says, “That trip helped me get my sense of adventure back and created new memories with Michael.” I realized that “I could still do some pretty cool things…”
 
​Yes you can, Samantha. And we can’t wait to see what they are!

​Donate       Vacation Home Donation        Volunteer

It's a simple mantra. It also works. As we enter our 13th year of GIVING, our growing group of friends and, more importantly, their children, have tapped into the greatest untapped resource in our nation: generosity. It's not that we're not generous as a nation. In fact, we're statistically the most generous country on earth on a variety of levels. It's just that there is so much more we can do. If we think Give First.
​
The Karen Wellington Foundation for Living with Breast Cancer is less a foundation and more an attitude. KWF spends no money on a cure. Not a dime. Instead, we focus on the healthy side of families LIVING with breast cancer and put some fun on their calendars. Vacations, spa days, concerts, sporting events. Fun stuff only.
It started 13 years ago with a decision to give one vacation to a family LIVING with breast cancer when Karen passed away at age 40 after 10 years of LIVING with breast cancer. One vacation turned into three. Three turned into six. And then we got lift and started to fly.

KWF is a bit of an anti-cancer foundation. We have no rules. We're as unfair as cancer is. We're also not just for the sickest or the poorest. We are not the grim reaper. Just the opposite. KWF looks for women who are not done LIVING yet. It has been more than 50 years (and $500 billion) since President Nixon declared our country's War on Cancer in 1971. We're financially supporting, hoping and praying for a cure. But we're not waiting. We know there are too many Karens out there who will likely not be around for a cure.

At our core, KWF is God-led, friend-fueled, fun-focused and, make no mistake about it, girl-powered. We've given over 800 special vacations, spa days and gifts of fun since 2007. Not to mention scores of FUN nights out with sisters, staycations, trips to Chicago, Pink, Bruce Springsteen, ZZ Top concerts with best friends and so much more. Although 30 percent of our vacations are "last" vacations, the majority of our recipients return with an attitude of Give First. They nominate a friend next to them in the chemo chair, or they ask that neighbor with a vacation home to give KWF a week a year. What we've unintentionally created is a very healthy cycle of receiving and giving – which LIVING with cancer and, life really, is all about.

We also have included our children along the way. Kindergarten classes do pink lemonade stands. A group of high school field hockey players gave up their Senior Night, a night usually self focused, to send the school's beloved custodian and his wife LIVING with breast cancer to the beach. I don't think I've ever seen a group of high school students happier. State sports championships or homecoming dances are no match for a young person learning the power of Give First. As they grown up, bake sales turn in to cheese coney contests at college fraternities. When they enter the work force, they have the mind and heart (and now a platform) to Give First.
Give First cuts through all the negativity. It's the great paradox of life: The more we give, the richer are our lives. And our chapters are growing as well. Each one started by a friend who approached us and applied a Give First attitude to families LIVING with cancer in their own communities.

So when you think of your friend, sister or co-worker who may be having the worst year of her life because of a cancer diagnosis, don't just dream about a cure for cancer. Think Give First. Our over 100 generous vacation home donors do that every year. That allows us to move some very deserving families off our waiting list and onto a beach, mountaintop or peaceful place somewhere. Yes, we collectively dipped a little deeper into our community's very deep pool of generosity.

​We think we can go a lot deeper together.

Kent Wellington is board chair of the Karen Wellington Foundation for Living with Breast Cancer and a partner at Graydon Law Firm

This (edited) article was originally published in the Cincinnati Enquirer in 2016.